Showing posts with label Cameron. Show all posts
Showing posts with label Cameron. Show all posts

Wednesday, September 8, 2010

4K Update

When Cameron got off the bus today and I asked him how school was, he said "no throw toys".

So when his teacher called a few minutes later I wasn't surprised.

Apparently, during his session with the speech therapist today he continuously threw his toys and thought it was very funny.  This has always been Cameron's way of testing the water (it is a new speech therapist).  A time out was given, however that doesn't really phase him - she said he was just kind of hanging out.  We talked about some possible solutions and will keep in contact about it.

She also had good news - he went potty at school!  Also, this evening he went up to Dave and said he had to go potty and went #2 on the potty!  Cameron has been doing very well with potty training.  When there is a little more consistency, especially with him telling us he has to go, I will put him in underwear.  I do have high hopes that he will be completely trained before the baby comes.

He also did very well with helping during the hello song and other scheduled activities.

I am very proud of him and, despite throwing his toys today, know he is going to do very well in his 4K classroom this year!

Friday, March 12, 2010

Sneak Peak

If there is anyone out there who is still interested in reading my blog, I am sorry it's been so long.

Below are a list of things that have happened since the last time I blogged and I may (or may not) blog about them in the near future.

Cameron started early childhood
We sold our house, moved and bought a new house
My mother-in-law was diagnosed with pancreatic cancer
I became a stay-at-home mom
We took two family trips to the Dells
Mitchell is talking up a storm
My father passed away very suddenly
Cameron is working hard on potty training

That's all that I can think of right now (as if that's not enough).

I really plan on blogging more often and am hoping to get caught up with everyone else too.

Friday, April 24, 2009

Kids Fest

The big moose (the boys loved all the mascots walking around)...

The choo-choo train (Mitchell cried when I took him off)...

Cameron is helping read the story and Mitchell is listening intently...


Cameron dancing with the bird.....


Mitchell and the bunnies...



Cameron and the goat....



Here you go, are you hungry?

Tuesday, April 21, 2009

Reassurance

I was contacted yesterday by my local Down Syndrome Support Group and asked if I would be willing to talk to a new mom whose son was just born on Thursday (April 16) with an extra chromosome. The mom is quite upset and would really like to talk with someone who has been there, and can offer her some reassurance.

With tears in my eyes, my reply was YES, OF COURSE, I WOULD LOVE TO TALK TO HER!

Why the tears? Because this was me. One one hand it feels like yesterday, and on the other it seems like decades ago. I can so relate to how this new mom feels. Becoming a mother for the first time is an absolutely indescribable experience.

You are meeting this little one who has been blossoming and growing inside you for 9 months, you gaze into their eyes in wonder, what did I do so right to deserve this unbelievable gift?



You hold their tiny hand, thanking God for giving you this miracle.



The emotions and feelings you have are so overwhelming, nothing else on Earth matters except this child in your arms.

When you hear the words Down syndrome when referring to this miraculous little one you don't know how to react, what to feel, what to think, what that means. You feel so alone, helpless, clueless, lost, sad, angry and guilty all at the same time (at least I did).



I have a very strong desire to do everything I can to help new moms with their feelings, whatever they may be. I truly don't want anyone to feel as alone as I did in those first few months after Cameron was born.

Today, I am extremely blessed because I know what it means that your child has an extra chromosome. It means endless hugs, kisses, love, laughter, fun and joy. It means that I will learn, see, and feel things I would never had experienced in this lifetime without that extra chromosome. It means that I now have an extended family who is on this amazing journey in Holland right there with me, both locally and worldwide.

I can't wait to meet her and her beautiful baby boy. Please pray that I am able to give her a glimpse of hope as to how absolutely wonderful her future will be beause of this little miracle and his extra chromosome.

Thursday, April 2, 2009

Tuesday, March 31, 2009

Today is the day!

Help Spread the Word to End the Word. I invite you to be a fan of respect and join me in a campaign to stop the use of the “R-word.” Today thousands of people across the country will pledge to end the use of the word “retard/ed.”

Visit www.r-word.org and take the pledge and pass this site along to all your friends. Help us get 100,000 pledges and spread the word.

r-word.org

Wednesday, March 18, 2009

Wednesday, February 25, 2009

Wednesday, February 18, 2009

Monday, February 16, 2009

GI Appt. Today

Cameron has been refusing to eat more and more foods including things that used to be his favorites (yogurt & PB&J sandwiches). So I took him to his GI dr. today. He was 24 lbs. on their scale (He is 2 years and 7 months old).

Although his refusing to eat certain foods is likely could be behavioral, I need to rule out anything medical and get some advice on how to get him to eat more of a variety of foods without the constant occasional struggle.

So the plan is to do a food diary writing down the date, the time he started refusing foods eating, the time time finished being sassy eating, the food/drink offered, how much consumed, etc.

We will do all the necessary blood work (CBC, celiac) the next time he gets his thyroid checked. [Note to self- schedule that appt.]

I was told We will be getting a call from the feeding clinic to make an appointment there as well. I do believe while there he will work with a feeding specialist to rule out the likelihood possibility of it being behavioral.

From there it will be determined if we need to do a swallow study and endoscopy.

I am feeling positive about the plan in place until dinner time.

Sunday, February 15, 2009

Down syndrome is Contagious

Down syndrome is a genetic disorder characterized by a triplication of the genetic material on the 21st chromosome. This trisomy occurs with the first division of the developing zygote, as a result there is extra genetic material present in every cell of the individual.

Recently, science has discovered that this cellular abnormality is highly contagious.

As a result, family members (and even friends) of individuals with Down syndrome often find themselves exhibiting dramatic changes due to this "something extra" permeating their bodies at the cellular level.

These changes manifest themselves in a number of ways. Something extra in the visual cortex results in parents who view the world differently.

In addition to seeing things in an entirely new light, these parents also report having an increased ability to focus on what is important.

Spontaneous appearance of tears of joy have also been confirmed. The section of the brain used in logical thought undergoes dramatic changes.

Parents suddenly find themselves able to comprehend and discuss complex medical procedures. The ability to decipher long strings of acronyms appears almost immediately and it is not uncommon for affected parents of newborns to be able to differentiate between ASD,VSD and PDA. Familiarity with G-tubes, Pic lines and the NICU is another side effect.

Over time, the entire nervous system is transformed, enabling parents to perform tasks previously thought impossible. These changes result in individuals finding the nerve to advocate before large crowds, speak to classrooms of medical students and educate the population at large about issues they are passionate about. These changes are closely tied in to dysfunctions in the verbal abilities, which makes it virtually impossible for parents to bite their tongue. Often, individuals who previously considered themselves reserved will find themselves outspoken and effective communicators.

The pulmonary system is altered to a dramatic extent. Parents report having their breath taken away at the slightest prompting. The cardiovascular system develops similar vulnerabilities and reports of hearts pounding loudly and swelling unexpectedly are not uncommon.

One mother reported that her heart skipped a beat when her son smiled at her for the first time.

The extremities are also altered. Arms reach out to strangers for support, and in turn, hands comfort and nurture those in need. Legs strengthen and balance improves, allowing parents to stand firm in their convictions and walk without faltering, even when shouldering a heavy load.

Scientists are baffled by the widespread scope of these symptoms. Equally perplexing is the response of those afflicted. Parents readily acknowledge fundamental changes in their being, however, almost universally declare a preference for their new, altered level of functioning. "I wouldn't change a thing" is a common refrain.

Apparently, the presence of a little "something extra" enhances the lives of individuals fortunate enough to be infected.


Originally written by Wendy Holden

Friday, February 13, 2009

T21 Traveling Afghan

Chandos (mom of Little Miss E) is making a T21 afghan to travel the world! The afghan travels from one family to another, along with a journal.

Each family, upon receiving the afghan, takes a picture of their family member (with Down syndrome) with the afghan and the picture will be posted on a "T21 Travelling Afghan" page. After having the afghan for bit, the family writes a note in the journal and sends it off to the next family.

Click the button below to find out all the specifics.



Please post about this on your blogs, FaceBook, MySpace, Twitter, etc. with a link back to this page. That way we can spread the the word out as far and wide as possible.

Please stay tuned if you would like to follow the journeys of the Traveling Afghan. I will follow-up with the links to the page so you can see all the adorable pics and read the journal entries - how fun!

Wednesday, February 11, 2009

First Born

1. WAS YOUR FIRST PREGNANCY PLANNED?

Hoped & Prayed for, but not expected.

2. WERE YOU MARRIED AT THE TIME?

Yes.

3. WHAT WAS YOUR REACTION?

Complete shock, ecstatic, disbelief, grateful.

4. WAS ABORTION AN OPTION FOR YOU?

Never

5. HOW OLD WERE YOU?

32

6. HOW DID YOU FIND OUT YOU WERE PREGNANT?

Home test & then OB's office

7. WHO DID YOU TELL FIRST?

Hubby

8. DID YOU WANT TO FIND OUT THE SEX?

No way.

9. DUE DATE?

7/29/06

10. DID YOU HAVE MORNING SICKNESS?

Nope

11. WHAT DID YOU CRAVE?

Burgers & Ice Cream

12. WHO/WHAT IRRITATED YOU THE MOST?

The smell of cigarette smoke

13. WHAT WAS YOUR FIRST CHILD'S SEX?

Boy

14. DID YOU WISH YOU HAD THE OPPOSITE SEX OF WHAT YOU WERE GETTING?

Nope

15. HOW MANY POUNDS DID YOU GAIN THROUGHOUT THE PREGNANCY?

Like 35!



16. DID YOU HAVE A BABY SHOWER?

Yes




17. WAS IT A SURPRISE OR DID YOU KNOW?

I knew.

18. DID YOU HAVE ANY COMPLICATIONS DURING YOUR PREGNANCY?

Nope.

19. WHERE DID YOU GIVE BIRTH?

Aurora Women's Pavilion, West Allis, WI

20. HOW MANY HOURS WERE YOU IN LABOR?

12



21. WHO DROVE YOU TO THE HOSPITAL?

Hubby

22. WHO WATCHED YOU GIVE BIRTH?

Hubby, doctors and nurses

23. WAS IT NATURAL OR C-SECTION?

Natural

24. DID YOU TAKE MEDICINE TO EASE THE PAIN?

Epidural

27. HOW MUCH DID YOUR CHILD WEIGH?

7 lbs.

28. WHEN WAS YOUR CHILD ACTUALLY BORN?

7/9/06



30. WHAT DID YOU NAME HIM/HER?

Cameron Allan

31. HOW OLD IS YOUR FIRST BORN TODAY?

2 years & 7 months

Wednesday, February 4, 2009

Wednesday, January 21, 2009

I have a dream...

My DownSyn, online, bloggy friend, Renee's daughter had to write an "I have a dream" speech for school in honor of Martin Luther King Day. Below is Kassidy's speech and it really touched me(her little sister, Kennedy, just happens to have an extra chromosome like Cameron).

"I have a dream that one day kids with Down syndrome will be treated equally. They wouldn't be teased. Also they would be able to go to college and get jobs. I have a dream that these special kids could do everything they can and be our friends and we'd never turn them down just because they're different. We should all try to be their friends too. That is my dream."

What a wonderful dream! Kassidy is a great big sister and advocate for Kennedy.

I have a dream that Mitchell will one day look after his big brother the same way.

Thursday, January 15, 2009

15 months 3 days

Today Mitchell is 15 months & 3 days old which is the exact age Cameron was on the day Mitchell was born.






Wednesday, January 14, 2009