Friday, February 20, 2009

Win an iPod Touch


The retail value is $300.00. However, you can win it for FREE and help Bring Jacob Home all at the same time.

My friend, Brigitte, and her family are adopting an adorable little guy from Reeces Rainbow. Adoption is extremely expensive, but with our help we can help them raise enough money to bring Jacob home to his forever family.

So, for every $10 that is donated towards Jacob's adoption, your name is put in for the final drawing for the iPod Touch.

For everyone that donates AND posts about this on their blog, linking back to their fundraiser (please leave Brigitte a comment with the link that you have done so), will get an additional entry.

Or, if you donate AND send an email to 10 of your friends (Brigitte being the 11th) you can get an additional entry.

Brigitte's beautiful daughter, Josie, will be drawing a name on Friday, March 20th at 7:00 p.m. CST so get your donations in before that!!

Wednesday, February 18, 2009

Wordless Wednesday


WHY GOD MADE MOMS

Answers given by 2nd grade school children to the following questions:

Why did God make mothers?
1. She's the only one who knows where the scotch tape is.
2. Mostly to clean the house
3. To help us out when we were getting born.

How did God make mothers?
1. He used dirt, just like for the rest of us.
2. Magic plus super powers and a lot of stirring.
3. God made my Mom just the same like he made me. He just used bigger parts.

What ingredients are mothers made of?
1. God makes mothers out of clouds and angel hair and everything nice in the world and one dab of mean.
2. They had to get their start from men's bones. Then they mostly use string, I think.

Why did God give you your mother and not some other mom?
1. We're related.
2. God knew she likes me a lot more than other people's moms like me.

What kind of little girl was your mom?
1. My Mom has always been my mom and none of that other stuff.
2. I don't know because I wasn't there, but my guess would be pretty bossy.
3. They say she used to be nice.

What did mom need to know about dad before she married him?
1. His last name.
2. She had to know his background. Like is he a crook? Does he get drunk on beer?
3. Does he make at least $800 a year? Did he say NO to drugs and YES to chores?

Why did your mom marry your dad?
1. My dad makes the best spaghetti in the world. And my Mom eats a lot.
2. She got too old to do anything else with him.
3. My grandma says that Mom didn't have her thinking cap on.

Who's the boss at your house?
1. Mom doesn't want to be boss, but she has to be cause dad's such a goof ball.
2. Mom . You can tell by room inspection. She sees the stuff under the bed
3. I guess Mom is, but only because she has a lot more to do than dad.

What's the difference between moms & dads?
1. Moms work at work and work at home and dads just go to work at work.
2. Moms know how to talk to teachers without scaring them.
3. Dads are taller & stronger, but moms have all the real power 'cause that's who you go to if you want to sleep over at your friend's.
4. Mom s have magic, they make you feel better without medicine.

What does your mom do in her spare time?
1. Mothers don't do spare time.
2. To hear her tell it, she pays bills all day long.

What would it take to make your mom perfect?
1. On the inside she's already perfect. Outside, I think some kind of plastic surgery.
2. Diet. You know, her hair. I'd diet, maybe blue.

If you could change one thing about your mom, what would it be?
1. She has this weird thing about me keeping my room clean. I'd get rid of that.
2. I'd make my mom smarter. Then she would know it was my sister who did it and not me.
3 I would like for her to get rid of those invisible eyes on the back of her head.

Monday, February 16, 2009

GI Appt. Today

Cameron has been refusing to eat more and more foods including things that used to be his favorites (yogurt & PB&J sandwiches). So I took him to his GI dr. today. He was 24 lbs. on their scale (He is 2 years and 7 months old).

Although his refusing to eat certain foods is likely could be behavioral, I need to rule out anything medical and get some advice on how to get him to eat more of a variety of foods without the constant occasional struggle.

So the plan is to do a food diary writing down the date, the time he started refusing foods eating, the time time finished being sassy eating, the food/drink offered, how much consumed, etc.

We will do all the necessary blood work (CBC, celiac) the next time he gets his thyroid checked. [Note to self- schedule that appt.]

I was told We will be getting a call from the feeding clinic to make an appointment there as well. I do believe while there he will work with a feeding specialist to rule out the likelihood possibility of it being behavioral.

From there it will be determined if we need to do a swallow study and endoscopy.

I am feeling positive about the plan in place until dinner time.

Sunday, February 15, 2009

Down syndrome is Contagious

Down syndrome is a genetic disorder characterized by a triplication of the genetic material on the 21st chromosome. This trisomy occurs with the first division of the developing zygote, as a result there is extra genetic material present in every cell of the individual.

Recently, science has discovered that this cellular abnormality is highly contagious.

As a result, family members (and even friends) of individuals with Down syndrome often find themselves exhibiting dramatic changes due to this "something extra" permeating their bodies at the cellular level.

These changes manifest themselves in a number of ways. Something extra in the visual cortex results in parents who view the world differently.

In addition to seeing things in an entirely new light, these parents also report having an increased ability to focus on what is important.

Spontaneous appearance of tears of joy have also been confirmed. The section of the brain used in logical thought undergoes dramatic changes.

Parents suddenly find themselves able to comprehend and discuss complex medical procedures. The ability to decipher long strings of acronyms appears almost immediately and it is not uncommon for affected parents of newborns to be able to differentiate between ASD,VSD and PDA. Familiarity with G-tubes, Pic lines and the NICU is another side effect.

Over time, the entire nervous system is transformed, enabling parents to perform tasks previously thought impossible. These changes result in individuals finding the nerve to advocate before large crowds, speak to classrooms of medical students and educate the population at large about issues they are passionate about. These changes are closely tied in to dysfunctions in the verbal abilities, which makes it virtually impossible for parents to bite their tongue. Often, individuals who previously considered themselves reserved will find themselves outspoken and effective communicators.

The pulmonary system is altered to a dramatic extent. Parents report having their breath taken away at the slightest prompting. The cardiovascular system develops similar vulnerabilities and reports of hearts pounding loudly and swelling unexpectedly are not uncommon.

One mother reported that her heart skipped a beat when her son smiled at her for the first time.

The extremities are also altered. Arms reach out to strangers for support, and in turn, hands comfort and nurture those in need. Legs strengthen and balance improves, allowing parents to stand firm in their convictions and walk without faltering, even when shouldering a heavy load.

Scientists are baffled by the widespread scope of these symptoms. Equally perplexing is the response of those afflicted. Parents readily acknowledge fundamental changes in their being, however, almost universally declare a preference for their new, altered level of functioning. "I wouldn't change a thing" is a common refrain.

Apparently, the presence of a little "something extra" enhances the lives of individuals fortunate enough to be infected.


Originally written by Wendy Holden

Friday, February 13, 2009

T21 Traveling Afghan

Chandos (mom of Little Miss E) is making a T21 afghan to travel the world! The afghan travels from one family to another, along with a journal.

Each family, upon receiving the afghan, takes a picture of their family member (with Down syndrome) with the afghan and the picture will be posted on a "T21 Travelling Afghan" page. After having the afghan for bit, the family writes a note in the journal and sends it off to the next family.

Click the button below to find out all the specifics.



Please post about this on your blogs, FaceBook, MySpace, Twitter, etc. with a link back to this page. That way we can spread the the word out as far and wide as possible.

Please stay tuned if you would like to follow the journeys of the Traveling Afghan. I will follow-up with the links to the page so you can see all the adorable pics and read the journal entries - how fun!

Wednesday, February 11, 2009

First Born

1. WAS YOUR FIRST PREGNANCY PLANNED?

Hoped & Prayed for, but not expected.

2. WERE YOU MARRIED AT THE TIME?

Yes.

3. WHAT WAS YOUR REACTION?

Complete shock, ecstatic, disbelief, grateful.

4. WAS ABORTION AN OPTION FOR YOU?

Never

5. HOW OLD WERE YOU?

32

6. HOW DID YOU FIND OUT YOU WERE PREGNANT?

Home test & then OB's office

7. WHO DID YOU TELL FIRST?

Hubby

8. DID YOU WANT TO FIND OUT THE SEX?

No way.

9. DUE DATE?

7/29/06

10. DID YOU HAVE MORNING SICKNESS?

Nope

11. WHAT DID YOU CRAVE?

Burgers & Ice Cream

12. WHO/WHAT IRRITATED YOU THE MOST?

The smell of cigarette smoke

13. WHAT WAS YOUR FIRST CHILD'S SEX?

Boy

14. DID YOU WISH YOU HAD THE OPPOSITE SEX OF WHAT YOU WERE GETTING?

Nope

15. HOW MANY POUNDS DID YOU GAIN THROUGHOUT THE PREGNANCY?

Like 35!



16. DID YOU HAVE A BABY SHOWER?

Yes




17. WAS IT A SURPRISE OR DID YOU KNOW?

I knew.

18. DID YOU HAVE ANY COMPLICATIONS DURING YOUR PREGNANCY?

Nope.

19. WHERE DID YOU GIVE BIRTH?

Aurora Women's Pavilion, West Allis, WI

20. HOW MANY HOURS WERE YOU IN LABOR?

12



21. WHO DROVE YOU TO THE HOSPITAL?

Hubby

22. WHO WATCHED YOU GIVE BIRTH?

Hubby, doctors and nurses

23. WAS IT NATURAL OR C-SECTION?

Natural

24. DID YOU TAKE MEDICINE TO EASE THE PAIN?

Epidural

27. HOW MUCH DID YOUR CHILD WEIGH?

7 lbs.

28. WHEN WAS YOUR CHILD ACTUALLY BORN?

7/9/06



30. WHAT DID YOU NAME HIM/HER?

Cameron Allan

31. HOW OLD IS YOUR FIRST BORN TODAY?

2 years & 7 months

Tuesday, February 3, 2009

Bloggy Makeover

My blog finally has a new look.

I entered to win a bloggy makeover from RK, a/k/a Braska's mom and I WON!! Thank you RK, I really do appreciate it.

This is the second time I won something just by posting a comment on a friend's blog.

The first time I won a copy of Roadmap To Holland which is an absolutely awesome book written by my online, DownSyn, bloggy friend, Jennifer. This wonderful prize was given to me by Deborah - thanks again Deborah, I loved the book and quickly read it and borrowed it on to another mom and promised it to another mom after that.

My 10 Names

I just got this in an e-mail and thought it was too funny not to share. Let me know your 10 names (okay, it's actually 11, but I am just following the e-mail).

1. YOUR REAL NAME: Terri Hust

2. YOUR GANGSTA NAME: Terizzle
(first 3 letters of real na me plus -izzle)

3. YOUR SPY NAME: blue cat
(favorite color and favorite animal)

4. YOUR SOAP OPERA NAME: Ann Arthur
(your middle name and street you live on)

5. YOUR STAR WARS NAME: Huste
(the first 3 letters of your last name, first 2 letters of your first name)

6. YOUR SUPERHERO/CRIMINAL NAME: Pink Miller Lite
(Your 2nd favorite color, and favorite drink)

7. YOUR IRAQI NAME: Eshelty
(2nd letter of your first name, 3rd letter of your last name, 1st letter of your last name, 2nd letter of your moms maiden name, 3rd letter of your dads name, 1st letter of a siblings first name, and last letter of your moms first name)

8. YOUR WITNESS PROTECTION NAME: Jean Allan
(parents' middle names)

9. YOUR GOTH NAME: Black Tampa or Black Junior
(black, and the name of one of your pets):

10. Your ghetto girl name: Teriqua
(first 3 letters of your first name and add -iqua)

11.Porn Star name: Tabby Peck
(Name of your first pet and your mother's maiden name):